Recusa familiar na doação de órgãos na central de notificação, captação e distribuição de órgãos - CNCDO/ Regional Zona da Mata/ Minas Gerais

Abstract

This study seeks to identify and to understand, from the standpoint of integrality, the determining factors for familiy refusal to donate organs, by examining the, perceptions of potential organ donor’s families who refuse to comply with donation requests. The theoretical reference to integrality views it as a structural pivot of health policy, an objective image, a goal to be reached. Its meanings to professional practices, the organization of services and to the organ donation and transplantation policies were distinguished. We used theoretical contributions from a variety of authors to qualify this study about integrality and the organ donation and transplantation policies in Brazil. A qualitative study was made through semi-structured individual interviews with 9 subjects refused to donate their deceased relatives’ organs. These subjects live in Juiz de Fora/MG, a city located in the CNCDO/Zona da Mata reference area, and were interviewed about organ donation between 2000 and 2004. The interviews led to the establishment of 7 categories: health care, shelter and bond, information/disinformation, communication, religious concept, social situation and body perception. These categories enable us to understand the reasons behind the refusals in an articulated way with the lack of integrality in daily “attention and care actions” in the families studied. The interview were presented through quotes of parts that we judged to be more relevant, on which to base the analysis and to enable us to take advantage of the proximity with research, recognizing the voice of the subjects and the value of the reflections they presented.