Sobre gramáticas emocionais do cuidado: sociabilidades e subjetividades de cuidadores na doença de alzheimer

Abstract

The purpose of this work is to consider the emotional aspects of the daily lives of those who provide care to individuals with Alzheimer’s disease. To achieve this, we observed groups of caregivers in two scenarios: one group of caregivers for Alzheimer’s patients on a social network, and in-person workshops for caregivers. Throughout these observations, certain patterns emerged, particularly the prevalence of an emotional grammar used to describe the experiences encountered in caregiving tasks. Much has been discussed about love, suffering, and humor within these experiences among caregivers affected by Alzheimer’s disease. With this in mind, the broader aim of this work is to encourage a perspective on Alzheimer’s disease, specifically focusing on the intricacies of the social relationships involved in this dynamic.